Autizam i mentalno zdravlje

In this presentation, I explore the role of the research community in improving the lives and wellbeing of people with learning disabilities and/or autistic people. Drawing on recent research, I think about how we define a good life as a life that is growing, regardless of where, how or with whom people live and yet, in the UK, people’s lives remain static (or worse) in terms of freedoms and opportunities. There are things we can do differently and do better.

Beth lives in Bristol. She has learning disabilities. She’s been a research subject, carried out her own research and been a co-researcher. These experiences have included studies to do with people with learning disabilities making their own healthcare decisions;  finding employment; having a good life; why there are not more people with learning disabilities in the media and the avoidable, early deaths of learning disabled people. In this session Beth will talk about what she thinks has worked well and not so well before, during and after “the research”.   

Kvaliteta života sveobuhvatan je i višedimenzionalan koncept koji prožima sve aspekte ljudskog postojanja. Kod autističnih osoba s pridruženim intelektualnim teškoćama, ona je neraskidivo vezana uz dostupnost i adekvatnost podrške koju primaju u svakodnevici. Unatoč važnosti ove teme, istraživanja o njihovoj kvaliteti života u Hrvatskoj, ali i u svijetu, još su uvijek malobrojna.
Ovo predavanje donosi uvid u rezultate istraživanja koja se trenutno provode u Hrvatskoj, pri čemu će kvaliteta života biti dovedena u vezu s formalnim i neformalnim izvorima podrške. Uz identifikaciju ključnih izazova, bit će istaknuti i primjeri dobre prakse. Cilj predavanja je otvoriti prostor za promišljanje i buduću konstruktivnu raspravu o tome kako kreirati sustave podrške koji odgovaraju realnim potrebama odrasle populacije autističnih osoba s pridruženim intelektualnim teškoćama.